Showing posts with label PTSD. Show all posts
Showing posts with label PTSD. Show all posts

Thursday, April 5, 2012

Dreams, continuing the A-Z challenge

Daydreams are where I want to live; night dreams are where I fear to visit...

That was my mantra for years and years and years.  I have always had vivid dreams.  I'm not just saying that so I can claim yet another special talent either.  I have scientific proof!  My sleep study from 2010 documented some such evidence.  The problem is, after some intense stuff, I learned they weren't just dreams, either.

As I've talked openly about before, I was diagnosed with PTSD, or Post Traumatic Stress Disorder, about 18 months after Olivia died.  Everyone experiences events in their own ways.  Everyone grieves in their own ways.  Not everyone whose child dies will be diagnosed with PTSD.  There is a long list of criteria.  I think looking back now, what is shocking is that it took so long to get the diagnosis.  I'd had symptoms for a long time.

One of the key symptoms is what most people recognize as flashbacks.  It's a visual reliving of a traumatic event.  I think the term lends itself to being perceived as an event that happens when one is awake as well.  If you've ever watched a television show or movie about a war vet, you've probably seen it portrayed that way.  That's all I knew about it.

In my life, that's not really how it presented itself.  Every time I closed my eyes, the scenes played like a horror movie that was my life.  The Dreams weren't dreams.  They were events I lived.  They were scenes in which I was the main character.  When my eyes opened, frequently, my heart was racing to the beat of a race car's engine.  I'd need a trash can or toilet because my stomach was still on that race track.  My hair, face, and downward were soaked from perspiration, and on and on.

These episodes were random for a while and then so regular that I avoided sleep in fear of them.  It was at that point when the daytime ones started.  Something  that reminded me of an event would trigger it.  That is when I started losing what little bit of life I'd started rebuilding.

My solace had become my daydreams.  I sat in bed and pretended.  I pretended I was on a far away beach.  That is like my safety word.  It's certainly my safe place.  After Olivia died, I spent way too much money and went to the Florida Keys.

 I'd always wanted to go and at that point, my mindset was "fuck it".  I didn't care if I'd need the money later.  I didn't care about anything except feeling the warm, soft sand between my toes that had been in bed with her tiny body for months.  I longed for beautiful, peaceful visions for my eyes that had seen nothing but death and ugliness for so long.  I craved the whispers of the breeze through palm trees instead of I.V. pumps, O2 sensors, and my own wailing.  I wanted to be completely selfish and try to find something that could take away the inner anguish of my mind and my soul.

I think I was foolish to think that was possible.  Except that it happened for brief moments during those seven days.  I took about seven books.  I took my little iPod shuffle.  I took not enough sunscreen.  And, other than some oopsies, it was my daydreams come true.  The physical beauty healed my raw eyes.  They natural audio was salve to my hurt ears that could only hear my daughter's pain over and over.  The beautiful, warm sand sloughed off the calloused skin and metaphorically set me on a new path.

And so it was for those days in April, 2008, until I returned home.  When I came home to the same environment that caused all of the pain, it was so very hard to withstand the gravitational pull of the damned dreams of the days and nights.

Fast forward to April 2012...My daydreams and night dreams mesh more often now, in a happy place.  There isn't as much fear and darkness.  I am on that beach with the coconut rolling off the tree.  The only difference is that I don't fall asleep on my side.  I don't want that wicked side-lobster burn in my happy dream.  And, there is almost always a conch fritter with a chocolate covered frozen key lime pie for dessert.

my view every day...just us old folks

Tuesday, February 7, 2012

Stormy weather...why didn't Al Roker mention this???

There's a neurological term called storming.  I'm not a doctor.  I used to play one on tv opposite Dr. Drake Ramoray (just kidding).  I'm not a nurse.  Anyway, I know it has to do with your heart rate rising like crazy and sweating a lot and I'm sure many other things.  I probably should have called my neuro ICU nurse friend for a hot second before I started writing....I digress.

About a year after Olivia died, I was diagnosed with PTSD .  Most people think of it associated with military people/veterans or survivors of natural disasters.  I was told I had survived kind of the same things watching Olivia's massive seizures for so many years, coding, resuscitation, resuscitating her myself once and then her dying in my arms.  I had vivid, horrid nightmares, which turned out to be flashbacks.  I rarely slept.  I developed a heightened startle reflex.  I cried all the time.  Sad didn't even begin to describe it.

It was very much like storm in my brain when I tried to visualize it.  Picture the streaky lighting flashing across the sky, bolt after bolt.  Clouds of varying shades of pale to silver to gray to charcoal and they are monstrous.  Some of them may seem to be reaching down for the ground around you.  The wind is blowing as if you're Dorothy and your house is about to be transported to Oz...this is how it felt and feels in my brain sometimes.

It has been like that many times the past few weeks.  I was not expecting it.  It has taken me by surprise kind of like the honey badger snatches a cobra.   I wonder if it is the fact that I experienced happiness this past year and my guard was let down?

Regardless of the reasons, it happened.  I've been a woman on the edge for weeks.  Add in the God awful steroids coursing through my system courtesy of my damn asthma and I'm sure there are some who'd call me a raging bitch.

I was able to get Olivia's birthday flowers placed.  That took away some of the anxiety.  I swear, one of the afternoons or sleepless nights, I'm going to tell her story.  I just have to be able to keep steady fingers to type.